Friday, July 29, 2011

A Week Later...

Yesterday marked one week post-surgery.  I have meant to post so many times in this past week, but I just never felt up to it.  Today I finally do.  Let me take you back to last Thursday....

Mike and I arrived at the hospital at 5:30 a.m.  They got me settled into the First Day Surgery Unit where all patients who will be admitted after surgery start out.  Several nurses and doctors came to see me and get me ready to go. Shortly after, Craig and Sara arrived.  Despite the strict signs saying only one person was allowed with the patient, they let them come see me.  This was truly the moment we had waited for.  We were here and it was all starting.  I hugged them both and they went out to wait until it was Sara's turn to get started.  My parents arrived shortly after and the nurse then brought them back to see me.  As they were returning to the waiting area Craig and Sara were being led to the room next to me to get her prepped and ready to go.  Around 7:30 or so they told Mike it was time for him to go.  We hugged and said "I love you" and they wheeled me away.  As I left I remember calling out a goodbye to Sara through a closed curtain.  That was the last thing I remember until I woke up in recovery at 12:45!  

Once I was back in my room I started asking about Sara.  My family and Sara's family had waited together in the waiting area, but of course I was done first so my parents and Mike had come to my room.  Mike went out to check on her and said that she was still in surgery and that there had been a few complications, but things were going fine.  It was several hours before she would finally get out of surgery -- right around 5:30 or so -- and when we would find out just how serious those complications really were.  Mike was there when Dr. Sollinger, Sara's surgeon, finally came out to talk to her family.  Dr. Sollinger explained that the vessels to my kidney were very thin.  The surgery had been going along routinely and they had the kidney in and all sewn in place.  It was only once they removed the clamps that they realized they had a problem.  Blood started coming out everywhere.  They naturally tried to suture the vessels more, but that just made the problem worse.  The vessels were tearing and the surgeons couldn't see what they were doing.  Sara was losing blood and they needed to make a decision.  If they just clamped off the vessels, the kidney would die and be useless.  They kept giving her blood and fluids and tried to decide what to do.  Eventually, Dr. Sollinger removed the kidney, placed it on ice, and clamped off Sara's vessels.  Then he called in Dr. D'Alessandro, the second highest surgeon at UW(Dr. Sollinger is the first).  They spent a lot of time just trying to decide what the best approach was.  They eventually decided to get a donor vessel from the donor bank at UW and see if they could use that to connect the kidney.  They sewed the vessel in place, connected the kidney, and unhooked the clamps. Thank God -- it held.  No bleeding.  But Sara's surgery had just gone from a 2-3 hour surgery to a 7.5 hour surgery and she lost a lot of blood.  She needed to be admitted to the ICU to be watched.  This included leaving a tube in her throat.  Mike went to visit her and said his heart just about broke to see her there, half-sedated, tube in her throat, confused, and so swollen from the fluids.  When he reported back to me, I almost felt guilty.  I felt so terrible for her.  My surgery had been so smooth and here she was in this condition.  But then I remembered that she had the kidney and now we just needed to pray for a successful recovery, along with no rejection.

On Friday the surgery really hit me.  I was tired and sore, had nausea and gas pain, and couldn't keep my eyes open.  But also I was worried about Sara.  Her family stopped by and so did the doctors and all reassured me that she would be okay.  And Mike kept checking in with them and stopping by to see her, bringing me back updates.  Friday night my friend Becky brought my boys to the hospital.  It was so good to see them even though I could hardly stay awake!  Saturday morning I woke up feeling miserable, but by afternoon I was starting to perk up and so glad to be able to talk to the boys and Mike.  I also got the great news that Sara would be moved to a regular room that night, just down the hall from me.  And, it also sounded like I was going to go home on Sunday!  Sometime Saturday, however, my incision started bleeding from the corner.  The doctors came by and put steri strips on it, hoping that would solve the problem.  On Sunday morning, it appeared that maybe it had worked and I got up to take a long-awaited shower.  It was then that I realized that the strips did not hold at all.  My incision was bleeding everywhere.  The resident on call tried calling my surgeon, Dr. Bellingham, to see what she wanted him to do, but she was not available.  He was reluctant to put any more sutures in as Dr. Bellingham is known for her beautiful incisions and doesn't like to leave much scarring! I reassured him that I did not care if my 3 inch bikini line scar had a little more depth to it!  He told me to be sure I told Dr. Bellingham that when I saw her next so that he didn't get in trouble.  Then he proceeded to put 2 sutures in and stop the bleeding once and for all.  Mike and I then took the much-awaited walk down to see Sara.  She was still pretty drugged up and couldn't keep her eyes open long, but I was so thankful to finally see her.  After that, Mike and I left the hospital and headed home.

This week has been a slow progress toward recovery.  I really never had much for pain at the incision site and thankfully needed no pain meds since I was in the hospital.  I did however have unpleasant gas pains and nausea.  But each day that seems to subside a bit more and I can now say that I feel like I am getting back to my old self.  Well, except for this huge, bruised stomach I now have!  I am starting to think maybe they removed my kidney and implanted a baby! :-)  But that too will resolve and eventually I will be left with only minimal scarring.  Sara is making tremendous progress at the hospital.  She has started Facebooking again, which means we know she is improving!  The kidney isn't quite up to speed yet, so this morning they did a biopsy just to be sure all is well.  The results were good!  Colleen Belle is indeed waking up!  I cannot wait for Sara to be able to get home and see her precious daughter Ashlyn.  She has handled her mom's absence like a champ and her finger is healing well from her dog bite.  And how great it will be for Craig to get back home as well.  Those days in the hospital can be so long and even though he did come home briefly earlier in the week, it will be such a relief for them to all be together again as a family.  

When I look back on what should have been a routine kidney transplant between two "thirty-something" girls, I am just amazed at how it all played out.  Dr. Sollinger has done over 3,000 transplants and said it was the most difficult surgery he has ever done.  He even said that at one point during the surgery he was very close to just leaving the kidney out, closing Sara up, and calling it a day.  But thanks to his and Dr. D'Alessandro's persistence, Sara has the kidney she needs.  Someday maybe we will know the reason that this was all more than we ever imagined -- or maybe we won't.  In the end all that matters is that Sara ends up living a long, healthy life. 

Wednesday, July 20, 2011

This Is It

Well, here I am....just 8 hours from the time I need to report to the hospital and 10 hours from surgery time.  I keep thinking maybe I will get nervous, but so far I am not nervous at all -- just very excited!  This morning my alarm went off at 4:07 a.m. and less than a minute later I received a text message.  I wondered who in the world was texting me at 4:08 a.m.  Turns out it was my lifelong friend Jolene telling me to have a good trip and that she was praying for Sara and I.  I texted her back and asked her why on earth she was up.  When she replied she said that her dog had gotten up to go to the bathroom at 4 a.m. so she figured that was God's way of telling her to get in contact with me.  Very cool!  At 5:10 a.m. Mike and I headed to Madison.  We arrived about 7 a.m. and had a full morning of pre-op visits including a physical, EKG, chest x-ray, MORE blood draws, urinalysis(NO BLOOD -- YAY!!), admissions, nurse visits, meeting with the surgeon, and talking to a pharmacist.  My coordinator Chris also stopped in to visit me and delivered me a bag of goodies, including a "Donate Life" polo shirt, a travel blanket, puzzle book, deck of cards, Lifesaver gummies, bottled water, Crystal Light, and a nice handwritten note from Chris herself.  After the morning we met up with Sara and Craig and had lunch in the hospital cafeteria.  Then we all headed over to the hotel to check in.  After we rested a bit and settled in, my parents arrived and we walked down the block to the Blue Moon Bar and Grill for an early dinner.  I had to stop eating at 5 p.m. and then drink some "yummy" lemony drink that is supposed to "clean me out" for surgery.  When we got back we found a comfy spot in the hotel lobby to sit and chat for awhile.  Sara and Craig talked to Ashlyn and Mike and I talked to the boys for the final time before surgery.

This afternoon while I was checking my email I saw I had an email from the National Bone Marrow Registry.  That is not unusual as I have been on the registry a long time and they often send me newsletters.  I was about to delete it when I noticed that it said something about a potential match.  I clicked on the email and it said that I was a potential match for a patient and I should call or email the Registry as soon as possible!  I couldn't believe it.  I glanced at the top of the email and it showed the date that I originally had registered with them -- July 22, 1991.  It will be my 20 year anniversary on Friday!  In all that time I have only been contacted once to tell me that I was a potential match for a patient.  That was back when I was in college!  And now, just a day before I was about to donate a kidney I was receiving this email!  Crazy!  I emailed them back and they called me right away.  The lady just laughed when she talked to me and said that for now they would place me on "inactive" status for approximately 6 months.  She wished me luck on my donation tomorrow.  Now I have no idea why this would happen right before my kidney donation...nor did I realize I was just 2 days away from my 20 year anniversary with them!  But I am sure someday it will all make sense -- just like this kidney journey has. 

To my family, friends, co-workers, friends and family of Lonnie and Sara, acquaintances, and total strangers who may be reading my blog -- a heartfelt thank you from the bottom of my heart.  At this moment, the night before surgery, I feel your love, your prayers, and your thoughts.  I have been humbled by the support you have all given me.  I will be eternally grateful.  And to God...thank you for the ride of a lifetime!  You have proven to me that You are eternally faithful and that Your love endures forever.  And to Sara...this is it!  We finally made it!  I look forward to your lifelong friendship.  You are my family now. 

Tuesday, July 19, 2011

48 Hours and Counting...

The transplant is now just 48 hours away.  In fact, in 48 hours we will likely be out of surgery and in recovery.  This is probably the point where I am supposed to start getting nervous, but I am just excited.  Last night Mike said, "can you believe this is finally happening?".  In some ways the past year has seemed to go by so slowly -- always waiting it seemed.  But when I look back on this past year it is incredible how much has happened.  From the rollercoaster journey of emotions with Lonnie to the whirlwind ride with Sara -- what a year it has been!

This past weekend Sara's family had a very scary event happen.  Craig and Sara's 5 year old daughter Ashlyn had the tip of her finger bit off by a dog.  They took her to the ER on Saturday, but unfortunately plastic surgery could not see her until yesterday.  Sara was really hoping they would take care of it right away as later this week she has plans! :-)  Fortunately the surgeon was able to do the repair yesterday afternoon.  Ashlyn will hopefully not be in much pain going forward.  She is such a sweet little girl and so very brave.

Yesterday I met Sara and her coworker Jan(who has been Sara's transplant nurse manager) at their office at Security Health Plan to get our pictures taken for the Clinic's newsletter and press release.  My sister Wendy was in town and went along with me to meet Sara.  Ashlyn came along too, so Wendy entertained her while we did the photo shoot.  Poor Ashlyn hadn't eaten all day in preparation for seeing the plastic surgeon, but she was so good!  After our photo session, Sara took us back to her office area to introduce us to some of her co-workers.  It was then that they did the neatest thing.  One by one they came up to me, shook my hand, thanked me, and handed me a plastic wrapped Lifesaver candy.  A couple of them would do it, then we would talk a minute, and then another one would come out of their office and hand me one.  It was so neat!  As I have said a hundred times in reference to other events in this journey, it was a very humbling experience.

Last night we attended the Northwoods League All Star Game here at Witter Field in Wisconsin Rapids.  I had a chance to meet my childhood hero, Paul Molitor!  He seemed like a very nice guy as he patiently signed autographs for a couple of thousand people.  So many of my childhood memories are of watching him play ball at County Stadium in Milwaukee.

The logistics of the next couple of days are as follows:  Today Mike and I will finish up last minute things around the house and get packed to head to Madison.  Isaiah has a wrestling clinic from 3:30-6 p.m. and then I am hoping that our family can go out and enjoy a relaxing dinner before I need to start fasting at 8 p.m.  Mike's mom is here and she will stay with the boys for the next couple of days.  My parents will be coming to Madison for the surgery.  Depending on when they plan to send me home, Mike may come back and get the boys on Friday or Saturday to come visit me.  I know I will miss them!  Tomorrow we will leave here at 5 a.m. in order to make it to my 7:15 pre-op appointment at UW.  Sara needs to be there at 9 a.m.  Tomorrow night, Craig, Sara, my parents, Mike, and I will all be staying at the Best Western, which is right next to the hospital's property.

This is really happening!  And I could not be more excited!!  To Sara...I feel so honored and blessed to be the one chosen to give you this kidney.  I can only pray that it will give you the life and energy that you need and want.  You are a blessing to my life!

Wednesday, July 13, 2011

The Kidney Cake

I admit that I was not looking forward to this week of work.  Last week we went on a wonderful vacation to Louisville, KY where our older son Josh attended Rajon Rondo's basketball camp.  It was a fun family time and we also were able to spend time with our friends the Storandts, as their son Nick also went to camp with Josh.  I took Monday to regroup before my return to work yesterday(Tuesday).  I love my job, however since I will be there just four days this week before I leave for surgery, I knew it would be a crazy week.  So like I said -- I wasn't looking forward to it.  But today when I got to work and saw the surprise waiting for me, it made my day -- actually it made my week!  My friend and co-worker Laura, who was the one that brought Sara and I together, brought me a kidney cake.  Yep, a kidney cake!  It was a marble cake with the REAL frosting(which I love) and it had a frosting kidney -- complete with veins!  The cake read, "Thanks!  You're the Best!  No Kidning!!"  I LOVED IT!!  How awesome!  And you know what else?  She even brought ice cream to go with it!  Laura -- you are so thoughtful.  And I am so grateful!!

Sara and I also received copies of the articles that were written by a freelance copywriter for Marshfield Clinic/Security Health Plan about our transplant.  The plan is to put out a press release on Monday, so hopefully our local papers will pick up the story.  I love to bring organ donation into the spotlight, so I am hoping our story will do that.

One week from tonight Mike and I and Sara and Craig will be settling in for the night at our hotel in Madison just a short walk from UW Hospital.  What will our thoughts be that night?  Will we be nervous?  Maybe.  Will we be freaking out?  I doubt it.  Will we be excited?  DEFINITELY!  This day has been a long time coming for both Sara and I, and yet as of the day of surgery we will only have known each other for exactly 2 months!  I believe we have talked, e-mailed, or chatted on Facebook almost every single day since the day we first became aware of each other.  I feel like I have known her forever.  And I know we will be friends -- forever.